Tag Archives: Paul

Good Free Games

I have been concerned to watch the Studio 17 kids at Santa Maria Urban Ministry playing mindless smash-and-blood or doll-dress-up games during their after homework computer time. I have started a list of “Good Free Games” as alternative suggestions. Studio 17 will also be buying some games (like Zoo Tycoon and Crayon Physics) soon.

I asked my 16-year-old son Paul to research and recommend Good Free Games which were fun to play but also educational. Some of these require flash software (will not work on an iPad) and all have advertisements to wait through (that’s why they are free). I added to Paul’s list games recommended by other sources. This afternoon, Studio 17 tried out about half of the games listed here and had a very good time. Additional suggestions are welcome!

I am adding to this list as we find more games, see More Good Free Games – or do a web search for “Good Free Games”.

16 February 2014 – links updated

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$163,613

If you have read my blog since January, you may know that my 16-year-old son Paul has recently developed chronic and debilitating headaches and dizziness.  Despite the capable and dedicated care of Pediatricians, Neurologists, Neurosurgeons, Pain Specialists, Psychologists and Psychiatrists, Occupational and Physical Therapists, and Nurse practitioners, Paul’s situation is stable but not improving. We continue to work with the Pain Management Clinic at Lucile Packard Children’s Hospital (LPCH). Paul is still attending the Hospital School at LPCH, so he will not have to repeat his Junior Year in High School. Thanks for your prayers and good wishes – they have been been a great support and blessing to our family.

This blog entry is about the financial side of this experience. I am not pointing my Finger of Blame at one organization or another as being Bad. I think that in general America’s medical care is excellent. But I am presenting a specific example of how very broken the financial side of America’s health system is.

When Paul first went into the hospital, we did not consider the financial side. We approved the recommended treatments and stayed focused on supporting Paul and each other. Over the months, this situation has evolved from a crisis into a new schedule: six sets of pills a day, drop off and pick up at doctors’ offices – hospital – school, walks and stretches and massage, time in the sun, and of course regular homework and chores. Almost every day, we receive medical bills or insurance Explanations of Benefits.

Explanations of Benefits are cryptic and offer a very narrow view of a small set of medical charges. The first bill which gave us any overview of what our medical adventure cost was the hospital bill for Paul’s brain surgery, for $163,613.70.

Statement Date: 03/02/2009
Service Date(s): 02/05/2009 – 02/09/2009
Total Charges $163,613.70
Patient Payments $0.00
Insurance Payments -$25,921.32
Insurance Adjustments -$136,324.50
Other Adjustments $0.00
Balance Due Upon Receipt $1,367.88

When I reviewed the statement, I was equally amazed at the total price and the 83% insurance adjustment. I know if I did not have a good job which includes health insurance, I would not be eligible for either the $25,921.32 insurance payment or the $136,324.50 discount. I would have to pay $163,613.70. Please understand, with my husband still looking for work, I am quite happy to pay only $1,367.88 for Paul’s brain surgery. However, I know there are growing numbers of people who have no job and little or no health insurance such as mine. It feels very wrong that the privileged pay the least.

Paul-Hospital SchoolPaul at LCPH Hospital School, Palo Alto CA<br /> photo: copyright 2009 Katy Dickinson Topiary ElephantLPCH Topiary Elephant, Palo Alto CA<br /> photo: copyright 2009 Katy Dickinson LPCH GiraffeLPCH Topiary Giraffe, Palo Alto CA<br /> photo: copyright 2009 Katy Dickinson LPCH Daffodils and PansiesLPCH Daffodils and Pansies, Palo Alto CA<br /> photo: copyright 2009 John Plocher

Images Copyright 2009 by Katy Dickinson

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What Happens After College? (Geeks and the Silicon Valley)

15 March 2010: More on this topic is in the blog entry “Transitions for Young Adults with Neurocognitive Deficits

On Saturday, 4 April 2009, I am giving a talk in Lafayette, California, called “What Happens After College? – Kids with Neurocognitive Disability Working in
Engineering and Computing”
at the Orion Academy 3rd Annual Seminar on Post-Secondary Transition Planning for Young Adults with Aspergers, NLD and other Neurocognitive Deficits.

I put together this presentation based on information and advice from many sources as well as from my own experience as the parent of a 16-year-old son with social-cognitive disability. I had particular fun creating the “Geeks and the Silicon Valley” section of the talk. I included my favorite quote from
Larry Wall (creator of Perl): “Most of you are familiar with the virtues of a programmer. There are three, of course: laziness, impatience, and hubris” plus an xkcd cartoon, pictures of tshirts (“You read my t-shirt. That’s enough social interaction for one day.”) from Think Geek and the xkcd store, and other geeky stuff.

The second part of the talk covers what counts in finding a job in the Silicon Valley (Recommendations, Academics, Experience, Being Fast), how to get experience before getting a job (Open Source, Internships, Volunteer Projects, College Jobs), and other essential knowledge. I make several references to The Unwritten Laws of Engineering (Revised and Updated, 2001) by James Skakoon and W.J. King, available from the ASME product catalog. My last quote is
from Ivan Sutherland in his 1996  Technology and Courage (Sun Labs Perspectives-96-1):

“I, for one, am and will always be a practicing technologist.
When denied my minimum daily adult dose of technology, I
get grouchy. I believe that technology is fun, especially when
computers are involved, a sort of grand game or puzzle with
ever so neat parts to fit together… If the technology you do
isn’t fun for you, you may wish to seek other employment.
Without the fun, none of us would go on.”

You can  review my presentation online, or you can attend the event to hear it in person!

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Silicon Valley Christmas

We had a pleasant Christmas at home with family this year. My parents adopted two young Siamese cats. My daughter Jessica came home from Carnegie Mellon University for three weeks. My two brothers and their families visited for almost a week. We drove north to San Francisco several times: to sing Christmas carols on the cable car and see the city lights, go to the Great Dickens Christmas Fair, gather for a family dinner at the Beach Chalet, and just visit.

We hosted three parties (Christmas, Jessica’s 20th birthday, and New Year’s). Unfortunately, our family photo server got sick and eventually died, so I am just now able to post this blog entry…

John and Jessica and I went to San Francisco Federal District Court on 19 December 2008 to hear attorney Victoria Hall present to Judge Jeffrey S. White on behalf of  Dr. Bob Jacobsen the latest on  JMRI and the KAM Open Source dispute.

St. Andrew’s Episcopal Church had a children’s Christmas pagent, and the craft fundraiser for SAMA (St.
Andrew’s Medical Assistance).  Sun Labs held its Holiday Cookie Exchange (to which John Plocher sent his famous peanut butter K Bars).

On our evening walks around our Willow Glen neighborhood, John and I admired the Christmas lights. One neighbor programmed a wonderful yard display that lit up different parts of their house as well as trees, bushes, and figures (candy canes, a seal, snowman, bear, and igloo) exactly timed to the movements of Christmas tunes. My favorite music was the Vince Guaraldi theme from “A Charlie Brown Christmas”. John and I stood in the rain the hear it twice.

We finally finished glazing and firing all of the ceramics we brought home from camp in August, including three tea cups by Jessica. My best Christmas present was one of a set of three beautiful and
well crafted ceramic cups my son Paul made at school: one each for John, Jessica, and me.

Borte and Khan

Borte and Khan, Siamese kittens photo: copyright 2008 Katy Dickinson

Laura and Borte

Laura and Borte the Siamese kitten photo: copyright 2008 Katy Dickinson

19 Dec JMRI Hearing, Federal Court

JMRI, 19 December Hearing, Federal District Court, Victoria Hall, Dr. Bob Jacobsen, Jessica Dickinson Goodman, Katy Dickinson photo: copyright 2008 John Plocher

Sun Labs Cookie Exchange

Sun Labs Cookie Exchange photo: copyright 2008 Katy Dickinson

sheep practice

St. Andrew's Christmas pagent sheep practice photo: copyright 2008 Katy Dickinson

angel practice

St. Andrew's Christmas pagent angel practice photo: copyright 2008 Katy Dickinson

St. Andrew’s cross

St. Andrew's cross with 3 Christmas trees photo: copyright 2008 Katy Dickinson

St. Andrew’s pagent

St. Andrew's children's pagent photo: copyright 2008 Katy Dickinson

St. Andrew’s children’s pagent

St. Andrew's children's pagent photo: copyright 2008 Katy Dickinson

SAMA craft sale

SAMA craft sale photo: copyright 2008 Katy Dickinson

SAMA craft sale

SAMA craft sale - embroidered purse photo: copyright 2008 Katy Dickinson

Cuthbert’s Tea Shoppe

Dickens Fair

Tea at the Dickens Fair, Jessica Dickinson Goodman, Matthew Holmes, Eleanor Dickinson photo: copyright 2008 Katy Dickinson

Pirates of Penzance

Dickens Fair

Pirates of Penzance, Dickens Fair photo: copyright 2008 Katy Dickinson

Ladies’ Oratorical & Recreational

Society at Mad Sal’s, Dickens Fair

Ladies' Oratorical and Recreational Society, Mad Sal's, Dickens Fair photo: copyright 2008 Katy Dickinson

SF Cable Car Carols

San Francisco Cable Car Carols, Eleanor Dickinson photo: copyright 2008 Katy Dickinson

Seeing the SF Hyatt’s decorations

Seeing the San Francisco Hyatt's decorations, Eleanor Dickinson, Jessica Dickinson Goodman, Matthew Holmes, Paul Dickinson Goodman, Wade Dickinson photo: copyright 2008 Katy Dickinson

Jessica and Paul

Jessica and Paul, San Francisco Hyatt photo: copyright 2008 Katy Dickinson

Hyatt lights, elevators

San Francisco Hyatt lights and elevators photo: copyright 2008 Katy Dickinson

decorating our tree

Jessica and Paul decorate our tree photo: copyright 2008 Katy Dickinson

giving tree advice

John Plocher giving tree advice photo: copyright 2008 Katy Dickinson

Jessica, Paul, tree

Jessica, Paul with tree photo: copyright 2008 Katy Dickinson

Willow Glen lights

Willow Glen Christmas lights photo: copyright 2008 Katy Dickinson

Paul’s mugs

3 mugs by Paul Dickinson Goodman photo: copyright 2008 Katy Dickinson

Jessica’s mugs

Jessica's mugs photo: copyright 2008 Katy Dickinson

Jessica’s 20th

Jessica's 20th birthday party photo: copyright 2008 Katy Dickinson

Images Copyright 2008 by Katy Dickinson and John Plocher

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Paul’s Glass

My 16-year-old son Paul is taking Ceramics class at Paly (Palo Alto High School). He has recently started to work with glass as well as clay. Paul is looking forward to taking a full year of glass blowing next year. For now, he is enjoying learning to work with rod glass. Each piece has to cool for 24 hours; sometimes the colors change unexpectedly during cooling. I have a feeling we are all getting small glass flowers, leaves, and mushrooms for Christmas presents this year.

Paul’s first glass flower
Paul's first glass flower photo: copyright 2008 Katy Dickinson

Paul’s second flowers
Paul's second glass flowers photo: copyright 2008 Katy Dickinson

Paul’s leaves
Paul's glass leaves photo: copyright 2008 Katy Dickinson

Images Copyright 2008 Katy Dickinson

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National Cathedral and Washington DC

A week ago, we got home from a trip to Washington DC. This was my second trip in 6 months to our nation’s capital, after a visit gap of many decades. Even though the weather was very hot and muggy, it was particularly enjoyable to go with my family (my son Paul, daughter Jessica and her boyfriend Matt, husband John, and our friend Laura Biche). We were mostly there to hear Jessica sing opera but during the days, we did manage to visit a few wonderful places: the Lincoln Memorial, Vietnam Veterans
Memorial
, Smithsonian Air & Space Museum, Smithsonian Natural History Museum, and the National Cathedral. We went by the Folger Shakespeare Library and were sorry to find it closed for the day. Congresswoman Eshoo’s office tried to get us White House tour tickets but they were unavailable.

The National Cathedral was very moving; I had never visited before. Since National Cathedral is Episcopal (and we are Episcopalian), we went to Sunday morning worship services. I have toured big impressive cathedrals and temples in many countries but they almost always belong to someone else’s religion: the Episcopal church mostly erects small buildings. I felt proud that this big beautiful place was created for the glory of God by my own church. The Space Window (including its moon rock fragment, a gift by the Apollo astronauts on the 5th anniversary of their moon landing) was particularly impressive. The memorial windows to Confederate Generals R.E. Lee and Stonewall Jackson and the tomb of U.S. President Woodrow Wilson were also notable.

Paul reading the
Gettysburg Address

Paul Reading the Gettysburg Address, Lincoln Memorial Washington DC<br /> photo: copyright 2008 Katy Dickinson

Resting in the shade
Lincoln Memorial

Resting in the shade at the Lincoln Memorial Washington DC<br /> photo: copyright 2008 Katy Dickinson

Abraham Lincoln
Lincoln Memorial

Abraham Lincoln at the Lincoln Memorial Washington DC<br /> photo: copyright 2008 Katy Dickinson

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American Flag<br /> photo: copyright 2008 Katy Dickinson

Women Soldiers
Vietnam Veterans Memorial

Women Veterans Vietnam Veterans Memorial Washington DC<br /> photo: copyright 2008 Katy Dickinson

Paul, Jessica, Matt in front of the
Wright Brothers’ 1903 Flyer

Paul, Jessica, Matt in front of the Wright Brothers' 1903 Flyer Washington DC<br /> photo: copyright 2008 Katy Dickinson

Laura at
Morrison-Clark Hotel

Laura Biche dressed for church, 1864 Morrison-Clark Hotel, Washington DC<br /> photo: copyright 2008 Katy Dickinson

Fireplace at the
Morrison-Clark Hotel

Fireplace at, 1864 Morrison-Clark Hotel, Washington DC<br /> photo: copyright 2008 Katy Dickinson

John and Laura
National Cathedral

John and Laura, National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Rev.M.L. King tribute
“I have a dream”

Rev. Dr. Martin Luther King, Jr. I have a dream National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Space Window
National Cathedral

Space Window National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Glass Reflections on Wilson’s
Presidential Seal, National Cathedral

Glass Reflections on Wilson's Presidential Seal, National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Creation doorway
National Cathedral

John and Laura, National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Creation of the Moon
National Cathedral

Creation of the Moon National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Exterior
National Cathedral

Exterior National Cathedral Washington DC<br /> photo: copyright 2008 Katy Dickinson

Midsummer Night’s Dream
Folger Shakespeare Library

Midsummer Night's Dream Folger Shakespeare Library Washington DC<br /> photo: copyright 2008 Katy Dickinson

Macbeth
Folger Shakespeare Library

Macbeth Folger Shakespeare Library Washington DC<br /> photo: copyright 2008 Katy Dickinson

King Lear
Folger Shakespeare Library

King Lear Folger Shakespeare Library Washington DC<br /> photo: copyright 2008 Katy Dickinson

Dino Cookies
Natural History Museum

Dino Cookies Natural History Museum Washington DC<br /> photo: copyright 2008 Katy Dickinson

Sandstone Concretion
Natural History Museum

Sandstone Concretion Natural History Museum Washington DC<br /> photo: copyright 2008 Katy Dickinson

Hope Diamond
Natural History Museum

Hope Diamond Natural History Museum Washington DC<br /> photo: copyright 2008 Katy Dickinson

324 pounds of Natural Sheet Copper
Natural History Museum

324 pounds of Natural Sheet Copper Natural History Museum Washington DC<br /> photo: copyright 2008 Katy Dickinson

John, Paul, Laura, Jessi, Matt
Natural History Museum

John, Paul, Laura, Jessi, Matt Natural History Museum Washington DC<br /> photo: copyright 2008 Katy Dickinson

Images Copyright 2008 by Katy Dickinson and John Plocher

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High School IEP – Individualized Education Program

We held my son Paul’s IEP today and I thought it might help other parents going through this annual special education ritual to read about it. Paul just finished his Sophomore (grade 10) year in High School here in the San Francisco Bay Area. An IEP or Individualized Education Program is a meeting and set of documents describing the interventions or accomodations which will support the unique educational needs of a particular disabled child. The IEP is essentially the record of what has happened during the prior year and what the school, teachers, parents, and child agree will help that child learn best within the school. (There are much more precise and complex ways to define an IEP, of course.) IEPs can be used in public or private schools. Paul attends public school.

Paul has had an IEP since about 2nd grade. When he was younger, the IEP focussed more on understanding and evaluating his disabilities and what services might help him. Now that Paul is almost 16, the IEP is more focussed on the resources and program needed to support Paul’s more-or-less understood educational, social, and cognitive challenges.

Once, when Paul was worried that his IEP accomodations were not fair and that taking advantage of them was like cheating, one of the school administrators explained to him that he had to work so much harder and longer hours than most students because of his disabilities, the accomodations were to level the playing field so that he could compete in the mainstream school. This made good sense to Paul.

This morning, after weeks of preliminary discussions, nine of us met for the IEP.  As he has matured, Paul himself has been increasingly consulted during his IEPs and he spoke at length several times during this meeting. We all left an hour and a half later with a twenty-ish page stack of papers but a short list of accomodations and course work for Paul’s 2008-2009 (Junior) year in High School. Here is what we signed off on:

    • Accomodations:
      1. Uses own laptop computer at school
      2. Access to school computer, printer access (while working at school)
      3. Extra time on exams and assignments, when pre-arranged with teacher
      4. Alternative setting for test taking, as needed (allowed same access
        to test instructions and question answering as other students taking that test)
      5. Possible that test can be read aloud if needed
      6. Classroom aide in English and History, transitional aide support in Geometry
      7. Homework log prepared by classroom aide
    • Classroom Aide’s Duties:
      1. Note taking assistance
      2. Collect papers distributed in class
      3. Facilitate turning in assignments
      4. Social diffusion (modeling)
      5. Completion of homework log
    • Tentative 2008-2009 Course Work:
      1. Geometry
      2. Ceramics
      3. English
      4. U.S. History
      5. Physical Education
      6. Study Skills (2 periods)

This year (2007-2008), Paul took one more solid subject (Biology) along with Math, Art, English, History, and P.E. but he had only one Study Skills period. We all decided that since Paul recently passed his High School exit exam and has almost completed his required courses for graduation, the stress of a 4th solid wasn’t worth it. We will find out in August which teachers are assigned to these classes and how Paul’s schedule works out in detail.

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